Bibliography |
New Jersey Resources |
| Healthy NJ: Information for Healthy Living |
www.healthynj.org |
Advocacy Organizations |
| The Access Project |
www.accessproject.org |
| Families USA: The Voice for Health Care Consumers |
www.familiesusa.org |
| Intercultural Cancer Council |
iccnetwork.org |
| Kaiser Family Foundation |
www.kff.org |
| National Health Law Program |
www.healthlaw.org |
| National Immigration Law Center |
www.nilc.org |
| STOMP: Specialized Training of Military Parents |
www.stompproject.org/national.asp |
| Voices for America's Children |
www.voicesforamericaschildren.org |
Bioethics |
| The President's Council on Bioethics |
www.bioethics.gov |
| Womens Bioethics Project |
www.womensbioethics.org |
BMT Resources
|
| Blood & Marrow Transplant Information Network |
www.bmtinfonet.org |
| The Bone Marrow Foundation |
www.bonemarrow.org |
| Centre for International Blood & Marrow Transplant Research |
www.cibmtr.org |
| The Marrow Foundation |
www.themarrowfoundation.org |
| National Bone Marrow Transplant Link |
www.nbmtlink.org |
| World Marrow Donor Association |
www.worldmarrow.org |
Cord Blood Resources |
| Annotated Bibliography |
www.cordbloodforum.org/index.html |
| NETCORD |
www.netcord.org |
Cultural & Linguistically Appropriate Services |
| Diversity Rx |
www.diversityrx.org |
| National Council on Interpreting in Health Care |
www.ncihc.org |
Health Disparities |
| Health Affairs, March/April 2005 - Volume 24, Number 2 Special Issue: Racial & Ethnic Disparities |
www.healthaffairs.org |
| Making Cancer Health Disparities History: Report of the Trans-HHS Cancer Health Disparities Progress Review Group, HHS, March 2004. |
www.chdprg.omhrc.gov/pdf/chdprg.pdf |
| National Healthcare Disparities Report. February 2004. Agency for Health Research & Quality Rockville, MD. |
www.qualitytools.ahrq.gov/disparitiesreport
/browse/browse.aspx |
| The Unequal Burden of Cancer: An Assessment of NIH Research & Programs for Ethnic Minorities & the Medically Underserved, Institute of Medicine, Washington, D.C. 1999. |
www.nap.edu/books/0309071542/html |
| Unequal Treatment: Confronting Racial & Ethinc Disparities in Healthcare. Institute of Medicine, 2003. |
www.nap.edu/books/030908265X/html. |
Health & Disease Information Portals |
| Association of Cancer Online Resources (ACOR) |
www.acor.org |
| Cancer Survivors Project |
www.cancersurvivorsproject.org |
| Information Center for Sickle Cell & Thalassemic Disorders. |
http://sickle.bwh.harvard.edu |
National Cancer Institute
Cancer Information Service 1-800-4-CANCER |
www.cancer.gov |
| National Heart Lung and Blood Institute |
www.nhlbi.org |
| NIH Office of Rare Diseases |
http://rarediseases.info.nih.gov |
| National Organization for Rare Diseases (NORD) |
www.rarediseases.org |
| Patient Centered Guides: Family Resource Centers |
www.patientcenters.com |
International Patients |
| Ramos, J.D. (2004) Can Cancer Patients from Other Countries Receive Treatment in the USA?. Cancer Resources & Advocacy |
http://ramoslink.info |
Legislation & Policy |
| Institue of Medicine, Board on Health Sciences Policy Project on Establishing a National Cord Blood Stem Cell Bank Program Project website: |
www.iom.edu./project.asp?=20073 |
| HR 596 Cord Blood Stem Cell Act of 2005 |
http://thomas.loc.gov/cgi-bin/query/z?c109:H.R.596.IH: |
Professional Organizations |
| American Society of Hematology |
www.hematology.org |
| American Society of Clinical Oncology |
www.asco.org |
| American Society of Multicultural Health and Transplant Professionals |
www.asmhtp.org/default.aspx |
| Association of Oncology Social Work |
www.aosw.org |
| Association of Pediatric Oncology Social Worker |
www.aposw.org |
| Children's Oncology Group |
www.childrensoncologygroup.org |
| Oncology Nursing Society |
www.ons.org |
| Transplant Finance Coordinators Association |
www.tfcassociation.org |
Note: Above Bibliography are reproduced here with permission of the author,
Ms. Joana Ramos,MSW, Cancer Resources and Advocacy,
Web link: http://ramoslink.info |
